Circadian Sleep Disorders Network
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Overview
[edit]Mission
[edit]The Circadian Sleep Disorders Network (CSD-N) seeks to connect people with circadian rhythm sleep disorders (CRSDs or CSDs) to spread awareness, improve treatment options, and advocate for accommodations for individuals presenting conditions impacting their sleep rhythms. In particular, they discuss delayed sleep phase disorder (DSPS), advanced sleep phase disorder (ASPS), and non-24-hour sleep–wake disorder (non-24). [1][2]
Background and History
[edit]The Circadian Sleep Disorders Network, Inc. was founded on August 18th, 2011, by Peter Mansbach, James Fadden, and Beth McGovern in Bethesda, MD. The founders met one another through an email list of people with circadian rhythm sleep disorders (CSDs), and decided to form a formal organization focused on CSDs. The CSD-N was founded to inform and spread awareness of circadian sleep disorders among doctors and patients.[3] The CSD-N is a non-profit governed by a Board of Directors elected by the membership for 2-year staggered terms.[4] The CSD-N also has a medical advisory board composed of many chronobiologists, including Charles Czeisler, the Director of Sleep Medicine at Harvard Medical School. The organization is also made up of members who decide to sign up.
Personnel
[edit]The current President is Peter Mansbach, with Alexandra Wharton serving as the Executive Vice President and James Fadden in the position of Vice President for Scientific Affairs. They also currently have eight other non-titled board members.
Work They Have Done
[edit]In 2023, the CSD-N published the article, “Registry and Circadian Rhythm Sleep-Wake Disorder Patients.”. The article describes an analysis of a 122-question survey of the Circadian Sleep Disorder Network’s registry of 479 people with clinically diagnosed circadian rhythm sleep-wake disorder (CRSWD). The survey found results that diverged from existing literature regarding CRSWD, namely that CRSWD patients are often tired even when sleeping on their preferred sleep schedule, and that circadian/sleep problems often precede depression. The paper also describes the inefficacy of phase-delay chronotherapy and light therapy for CRSWD patients, emphasizing the importance of creating novel, effective treatments for the disorder.[5]
The CSD-N has also sent members to events such as SLEEP 2024, a meeting planned by the American Academy of Sleep Medicine (AASM) and the Sleep Research Society (SRS), and the Sleep Advocacy Forum and Hill Day, an advocacy event held by Project Sleep in Washington, D.C.[6][7]
References
[edit]- ^ Staff, World Sleep Society (2024-02-16). "Circadian Sleep Disorders Network". Healthier Sleep Magazine. Retrieved 2025-04-23.
- ^ "Healthier Sleep Magazine World Sleep Congress". Issuu. 2024-02-13. Retrieved 2025-04-24.
- ^ "Circadian Sleep Disorders Network". www.circadiansleepdisorders.org. Retrieved 2025-04-07.
- ^ "Bylaws - Circadian Sleep Disorders Network". www.circadiansleepdisorders.org. Retrieved 2025-04-07.
- ^ Mansbach, Peter; Fadden, James S. P.; McGovern, Lynn (2024-12-01). "Registry and survey of circadian rhythm sleep-wake disorder patients". Sleep Medicine: X. 7: 100100. doi:10.1016/j.sleepx.2023.100100. ISSN 2590-1427. PMC 10790090. PMID 38229915.
- ^ "SLEEP 2024 | APSS Annual Meeting | AASM | SRS | Houston". American Academy of Sleep Medicine – Association for Sleep Clinicians and Researchers. Retrieved 2025-04-24.
- ^ Aubrey, Rachel (2024-12-16). "Advocacy in Action: Elevating Sleep Awareness on Capitol Hill". Project Sleep. Retrieved 2025-04-24.